MEDIA ALERT: Canadian Organization for Rare Disorders urges Ontario to implement Canada's first Rare Disease Strategy

TORONTO, Feb. 27, 2017 /CNW/ - On International Rare Disease Day, patient representatives from the Canadian Organization for Rare Disorders (CORD) will meet with John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and other MPPs to share their experiences of living with rare disorders. 

CORD will also encourage Ontario to become the first Canadian jurisdiction to implement a Rare Disease Strategy, following Ontario's announcement of a Rare Disease Working Group at last year's Rare Disease Day event. Concrete actions are needed to address gaps between patient needs and available resources for diagnosis, care and treatment.

WHAT:	Urging Ontario to take bold steps to implement Canada's first Rare Disease Strategy.
WHEN:	Tuesday, FEBRUARY 28, 2017
	8:30am
WHERE:	Queen's Park, 111 Wellesley St W, Toronto
	"In Camera" Legislative Dining Room, Side Bar Room
WHO:	Dr. Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders (CORD)
	Dr. John Wallenburg, Chief Scientific Officer, Cystic Fibrosis Canada
	John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care
	Michael Harris, Critic for Research, Innovation & Science, Progressive Conservative Party of Ontario

SOURCE Canadian Organization for Rare Disorders

Durhane Wong-Rieger, Canadian Organization for Rare Disorders, [phone], [email protected]